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Connective
Tissue Disease
Living with Autoimmune Connective
Tissue Diseases
Autoimmune connective tissue disorders affect millions of
Americans. Lupus and Scleroderma are two of the lesser known
connective tissue disorders that disproportionately affect
women, and in the case of lupus disproportionately affect women
of color. These illnesses are frequently diagnosed during the
very busy and productive childbearing years. Little work has
been done on the affect of these illnesses on the day to day
activities of the people who live their lives in the presence of
these illness. These pages outlines the recent research of Cindy
Mendelson, PhD, RN and Janet Poole, PhD, OTR/L who are working
individually and collectively on issues associated with the
quality of life of people with Lupus and Scleroderma.
Cindy Mendelson
Janet Poole
Learn About Our Research
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Workplace challenges
encountered by persons with scleroderma (effective 7/1/08)
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An Exploratory Study of the
Impact of Two Systemic Autoimmune Diseases on Perceived
Parenting Ability
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Development and evaluation
of a self management Program for Scleroderma.
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Living with the Wolf:
Women's Self-Management of Lupus.
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Living with the wolf: A
pilot study of enculturation into life with Lupus.
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