Human Research Review Committee
(HRRC-IRB)
Supported by the
Human Research Protections Office
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More Information/Education about research for participants
Our Office will be adding more resources - this is just a preliminary list to get things started.
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Get Research Smart - A web site that provides basic information to potential research subjects to assist them in making decision about whether to participate in research studies.
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Coalition of Cancer Cooperative Groups - Has abundant education about cancer clinical trials.
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Entering a Clinical Trial: Is It Right For You - An excellent and honest, 20 minute video. "Patients often have misconceptions about clinical trials that could influence their decision to participate. Dana-Farber, in collaboration with Brigham and Women's Hospital, Massachusetts General Hospital, and Beth Israel Deaconess Medical Center, has produced an audiovisual program and educational booklet to dispel these misconceptions. Using their own words, patients and clinicians explain what clinical trials are and offer suggestions to help patients decide whether or not to enroll in a study."
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CISCRP - The Center for Information & Study on Clinical Research Participation. A non-profit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research participation and the role that each party plays as a participant in the process.
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Understanding Clinical Trials - What does each Phase entail? - A great explanation from the Cancer Research UK Organization on the different phases of a clinical trial.
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The Society for Women’s Health Research - the nation’s only non-profit organization whose mission is to improve the health of all women through research, education and advocacy. The Society encourages the study of sex differences between women and men that affect the prevention, diagnosis and treatment of disease.
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Understanding Child Assent process - The National Cancer Institute has guides and information on the child assent process.
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Latest Information on Research Outcomes - patientINFORM is a free online service that provides patients and their caregivers access to some of the most up-to-date, reliable and important research available about the diagnosis and treatment of specific diseases.
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