| SABI Database: Social and Behavioral Instruments | University of North Carolina - Center for AIDS Research Social and Behavioral Sciences Research Core | Searchable database containing an extensive collection of validated instruments across 12 domains: attitudes, coping, quality of life, substance use, mental health, HIV knowledge, social support, self-efficacy, sexual risk behavior, medication adherence, violence, and stigma. Access is free. |
| NIH Toolbox | Northwestern University: Funding for HealthMeasures was provided by the NIH. | 200+ neuro-behavioral measures assessing cognition, emotion, motor, and sensation. Types of measures include self-report and proxy measures and performance-based tests. Use for populations aged 3-85. Access via the free app with in-app paid subscription. iPad app. App is available in English, Spanish, and Cebuano. |
| NIH PROMIS, Patient-Reported Outcomes Measurement Information System | Northwestern University: Funding for HealthMeasures was provided by the NIH. | 300+ measures assessing physical, mental, and social health via self-report assessment. Contains both adult and pediatric assessments. Access for free as pdfs on the HealthMeasures website. Also available through the PROMIS iPad app and the NIH Toolbox iPad app. Translations are available upon request by emailing translations@HealthMeasures.net. |
| HealthMeasures | Northwestern University: Funding for HealthMeasures was provided by the NIH. | A repository for accessing the NIH Toolbox, Neuro-QoL, ASCQ-Me, and PROMIS measurement systems. Domains covered by these four measurement systems include physical and mental health, social health, symptoms, well-being and life satisfaction; and sensory, motor and cognitive function. |
| NIH Public Health Emergency and Disaster Research Response (DR2) Data Collection Tools and Resources | National Institute of Environmental Health Sciences, U.S. National Library of Medicine | Access to 450+ data collection instruments relating to disaster research, including SARS-CoV-2 instruments. Free access includes pdf and REDCap codebook versions. |
| PhenX Toolkit | PhenX, developed through NIH funding sources: National Human Genome Research Institute (NHGRI), National Institute on Drug Abuse (NIDA), the Office of Behavioral and Social Sciences Research (OBSSR), the National Institute of Mental Health (NIMH), the National Heart, Lung, and Blood Institute (NHLBI), the National Institute on Minority Health and Health Disparities (NIMHD), the National Cancer Institute (NCI), and the Tobacco Regulatory Science Program (TRSP). | Toolkit includes 874 data collection instruments and tools covering 29 research domains. Updated to include SARS-CoV-2 protocols. Free access. |
| APA PsycTests® | American Psychological Association | Comprehensive database of measures, scales, and instruments for psychological research and teaching. Searchable by test type, methodology used, author, construct, factors, subscales, and year. Paid subscription required. Options include individual and institutional access. |
| REDCap Shared Library | REDCap, supported by the NIH and powered by Vanderbilt University | Large searchable library of data collection instruments for health and behavioral health research. Items are downloadable as pdf, and can be imported directly into a REDCap project. |
| Alcohol & Drug Abuse Institute Library | University of Washington, Addictions, Drug & Alcohol Institute | Screening and assessment tools for substance use, substance use disorders, and other mental health disorders. Use with all ages. Some free access provided. |
| University of Washington Measurement Tools and Resources | University of Washington Health Sciences Library | Links to numerous health sciences research resources for finding assessments and other tools. Free reference. |
| Rand Surveys | RAND Health Care | Surveys are free in the public domain. Survey domains include health, mental health, aging and health, diversity and health, health economics, HIV, STDs, and sexual behavior; maternal, child, and adolescent health; military health policy; patient reporting, quality of life, quality of care, research methods, and substance use harm reduction. |
| Pearson Clinical and Classroom Assessments | Resources include professional development and training, product toolkits, and assessments in domains including early childhood, health psychology, rehabilitation and therapy, cognitive, depression and anxiety, social work, and behavior. Purchase is required for access. | |
| Participatory Action Research (PAR) | Social Analysis Systems, SAS2 | Handbook for Participatory Action Research, Planning, and Evaluation is available for free download in English, French, and Spanish. The handbook contains 6 modules and provides a guide for engaging people to participate in research about complex social issues. |
| WPS Assessments | WPS | Psychological assessments available for purchase, across domains such as: Cognitive/memory, developmental, emotional behavioral, personality, motor, oral language, sensory processing, social/pragmatics. |
| National Institute on Drug Abuse Screening and Assessment Tools Chart | National Institute on Drug Abuse | Table of evidence-based assessment and screening tools for alcohol and drugs, for adults and adolescents – includes self-assessment and clinician-administered tools. |
| CRAFFT 2.1 | Center for Adolescent Behavioral Health Research (CABHRe) | The CRAFFT is a well-validated substance use screening tool for adolescents aged 12-21. It is recommended by the American Academy of Pediatrics’ Bright Futures Guidelines for preventive care screenings and well-visits. The CRAFFT tool is free to use. The tool is available as a self-administered questionnaire to be completed by a patient and as an interview tool to be administered by a provider. The CRAFFT is available in several languages. |
| DAST-10 | National Institute on Drug Abuse (NIDA) Clinical Trials Network (CTN) | The Drug Abuse Screen Test (DAST-10) was designed to provide a brief, self-report instrument for population screening, clinical case finding and treatment evaluation research. It can be used with adults and older youth. The DAST-10 yields a quantitative index of the degree of consequences related to drug abuse. The instrument takes approximately 5 minutes to administer and may be given in either a self-report or interview format. The DAST may be used in a variety of settings to provide a quick index of drug abuse problems. Free to use. |
| The NIDA Quick Screen | National Institute on Drug Abuse (NIDA) | The NIDA Quick Screen and NIDA-modified ASSIST are appropriate for patients age 18 or older. You may deliver it as an interview and record patient responses, or read the questions aloud and have the patient fill out responses on a written questionnaire. It is recommended that the person administering the screening review the sample script to introduce the screening process. The script offers helpful language for introducing what can be a sensitive topic for patients. Free to use. |
| The Alcohol, Smoking and Substance Involvement Screening Test – ASSIST (version 3) | World Health Organization | The Alcohol, Smoking and Substance Involvement Screening Test (ASSIST) was developed for the World Health Organization (WHO) by an international group of substance abuse researchers to detect and manage substance use and related problems in primary and general medical care settings. Multiple translations available; free to use. |
| Opioid Risk Tool – OUD (ORT OUD) | National Institute on Drug Abuse (NIDA) | This tool should be administered to patients upon an initial visit prior to beginning or continuing opioid therapy for pain management. A score of 2 or lower indicates low risk for future opioid use disorder; a score of >/= 3 indicates high risk for opioid use disorder. |
| Tobacco, Alcohol, Prescription Medication, and other Substance use Tool | National Institute on Drug Abuse | The Tobacco, Alcohol, Prescription medication, and other Substance use (TAPS) Tool consists of a combined screening component (TAPS-1) followed by a brief assessment (TAPS-2) for those who screen positive. Combines screening and brief assessment for commonly used substances, eliminating the need for multiple screening and lengthy assessment tools. May be either self-administered directly by the patient or as an interview by a health professionalUses an electronic format (available here as an online tool). Uses a screening component to ask about frequency of substance use in the past 12 months. Facilitates a brief assessment of past 3 months problem use to the patient. |
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Cite the Grant: This project is supported by an award from the National Center for Advancing Translational Sciences, National Institutes of Health under grant number UL1TR001449. Link the Grant: To your publication in NCBI My Bibliography (Pandhi & Campen, PIs) |
